The catalyst for Lynda’s change of heart occurred during a full-day Insight Session of the T1 Diabetes Think Tank Network, a not-for-profit collaboration of T1D healthcare providers and patient opinion leaders(www.t1thinktank.com). Think Tank uses innovative methods, such as dramatic and creative arts, improv comedy and storytelling to transform lives by improving communication and understanding between people living with T1D and their healthcare professionals. Think Tank has shown that by putting patients on an equal footing with healthcare professionals in a safe, nonjudgmental environment, barriers to true and meaningful communication fall away, the standard of care is elevated and patient self-management is empowered.
Lynda was diagnosed with Type 1 diabetes in 1973, and has lived successfully with the condition for more than 40 years through many career and life challenges, including two successful high-risk pregnancies and a high-powered international legal and business career. Having faced the debilitating effects of fear and discrimination on the part of others in the early years of living with her condition, she managed this information on a 'need to know' basis. Even those who knew she lived with T1D were not privy to her thoughts and feelings on the subject.
If you would like to have Lynda tell her stories at your event, through speech or song or both click here.
Since joining the Think Tank Network in 2013 (she now sits on the Board of Directors), Lynda has become a passionate patient activist and thought leader, seeking to empower the patient voice by sharing her stories about living with T1D, through narrative writing, motivational speaking and song. ‘My experience with Think Tank made me realize that by sharing my stories I could help other people, both patients and healthcare professionals’ says Lynda. ‘That had never occurred to me. For many years, I was the only person I knew with Type 1 Diabetes, and I guess I internalized that to a very deep extent, that feeling of isolation, and never really thought I should be sharing my stories.’
Now she has begun to speak, write and sing publicly about her experiences with the hope that by doing so, she will empower others to survive and thrive on the never-ending T1D journey, as well as raise public and professional awareness of the unique challenges encountered by those living with Type 1, which is typically misunderstood and often confused or conflated with other types of diabetes. Her one-woman cabaret on the subject: Not Dead Yet: A Cabaret with Deep Dark Secrets, is set to premier in 2016.